On Friday the 31st we went to the clinic to start Davin's 2nd cycle of chemo. We had to get up early and leave early to be there at 8. It was really early for all of us and we ended up being 20 min late. But when we got there we were the only ones in the clinic. Davin wore his new shirt with some sweat pants that he loves (his comfortable clothes). He was very helpful for all of the nurses and knew exactly what to do. While we were waiting for the nurse to come in and access his port we had some breakfast (powdered doughnuts) and Davin had it all over his mouth.
When the nurse came in to access his port he was a little nervous but he did a great job and it was all over quickly. After that the social worker for the clinic came in to talk to Davin. She asked him what kind of toys he wanted to play with while he was here and he told her legos. She also brought him some doctor stuff to play with. That was his favorite! We played doctor basically on and off all day, but she got to stay and play with Davin for a long time. He had a thing to access ports and hooked to an IV fluid bag and we had syringes and put medicine/water in it and everything. I think I had about 5 ports and I think Dad got a few too.
We got all hooked up and moved into the big waiting area of the clinic where everyone else would be later that day. Davin got to choose where to sit and we made camp and started playing. It was just the beginning of a long day. Davin got to do a few pictures with some dot paints and we played doctor some more, we read some books that the social worker gave to us and played on his leap pad. He even got another visit from Elliot. He has so much fun seeing that dog. I love that he gets to wander around the hospital and visit everyone.
A little bit after we started the second chemo drug (we had three to get that day) Davin started to not feel so good. He put on his hat and got out his star wars blanket and watched some movies. He started to really not feel good and we ended up giving him all of the nausea medicine we could give him. I don't really think it helped and he was just really tired, bored and miserable. He never threw up but he just wasn't happy. Chad and I were both really happy when we were finally able to go home. We were the first ones to get to the clinic and the last ones to leave. And we got to leave at 5 again so we had to drive in rush hour traffic again. Davin stayed awake for half of the ride and then finally gave up and fell asleep.
When we got home he played and we had a fairly normal night. But because Davin had a nap in the car he didn't go to bed forever! We were up with him trying to figure out how to make him go to sleep until midnight. The next morning he was feeling pretty good. He was excited to have Grandma and Grandpa Cloward come up to see him. Davin and Liam even sat in front of the window for a while waiting for them even through they wouldn't be there for a few more hours.
Since then we have had fairly normal days. Davin has felt really well again and was off the nausea medicine by the next day. We have started doing the shots again and he really doesn't like them. The first time we had to do it he was really good and didn't fight but he gets really scared of it hurting and doesn't want to do them everyday. Hopefully we won't have to do them very long and he can stop soon. This morning we found a mouth sore in his mouth. It looks like it really hurts but he hasn't complained about it yet. Mouth sores are common with the drugs he had and the doctors told us that they would go away when his blood counts go up, but until then we just have to help him find things to eat that don't hurt him and give him medicine when he complains of pain.
The plan (and the next thing to wait for) is to go in for an MRI on the 20th and then the doctors and surgeons will look at it and figure out if we need more chemo or if we can schedule a surgery. We won't know what we are doing until the 21st when we meet with the doctors. I'm hoping that we can just do the surgery and be done with this whole thing. I would really like to not have to do chemo during the fall when everyone is getting colds and I would like to have Davin feeling better so that he can have fun trick or treating this year which he is really excited about. :)
