Thursday, September 27, 2012

The day after the surgery

The next few day after the surgery we had a lot of people come to visit Davin. One of the first people to stop by was our home health nurse Cheryl. She is really nice and Davin really likes her. She is really good with him and he has gotten really comfortable with her accessing his port and he even helps her put the blood in the tube and mix it up and down. Davin always plays games with Cheryl and hides in his forts that he builds in the front room so when she came to see him he couldn't go hide so he decided to pretend to be asleep. Silly kid!
 
The next visitor we had was Dr. Bean. She was really nice and brought both the boys books. She always gives out book at their well check up and so she said she had to run and get books for the boys that morning. She didn't get to see Davin awake at all but said that he was looking good. Davin slept most of the day and was only awake for a little while. Grandparents and Tyson and Holly came to see him but again he was asleep for most of it.

Chad and I were able to talk to the oncologists today about the tumor a little more and find out answers to more of our questions. We are still worried about the part that is still there and wanted to make sure it wasn't going to be a problem. There are still cases that are abnormal and weird but they said they don't think it will spread anywhere else in the body. It is what it is and it isn't going to go from being benign to cancerous or a different type of cancer. They said it is mostly benign so it really shouldn't grow very fast if it grows at all. So they are expecting it to stay around the same size and Davin will have it at the bottom of his spine for the rest of his life. We will get the full pathology reports in a few days but they really aren't expecting it to be any different then the biopsy.

Davin doesn't like to move much and is sleeping most of the day but the nurses still want him to try and move as much as possible. We don't want him to get pnemonia or anything. He sat up a few times and sat at the edge of the bed but didn't do much. They started him on a liquid diet in the afternoon and soon moved it to a solid diet but he didn't really feel like eating much. He had lots of water and a bite or two of pudding but that was it. He even took some med. oraly which is good so that we can get him off the morphine drip.